Showing posts with label patients. Show all posts
Showing posts with label patients. Show all posts

Wednesday, July 4, 2012

HGRV found in European ME/CFS patients

HGRV found in European ME/CFS patients Tube. Duration : 2.30 Mins.


September 2010. After the bombshell findings of Murine Leukemia Virus Related Virus (XMRV) being discovered in American CFS patients and this finding being published in the highly coveted SCIENCE journal (Lomardi et al, 2009 - Detection of an infectious retrovirus XMRV in the blood cells of patients with CFS) by the Whittemore Peterson Institute (WPI) and this finding confirmed as real by the American government FDA and published in PNAS journal (Alter et al, 2010 - Detection of MLV-related virus gene sequences in blood of patients with chronic fatigue syndrome and healthy blood donors) who discovered polytrophic MULV's in CFS patients - things in Europe aren't so rosy. Or so people are lead to believe..... due to the silence in the media and endless 'failed' studies using outspoken denialists of ME/CFS, methods that cannot detect XMRV and a cohort of psychiatrically ill people who do not meet the Criteria for neuro immune CFS or ME. The British and Dutch say they can't find XMRV, and it's probably contamination, and thus won't fund any more studies because they cannot find anything. Now, by total coincidence, both these countries have spent decades blaming their own citizens with ME/CFS and telling them their viral symptoms are a 'belief' in between the ears, and they need to manage their illness with Cognitive Behavioural Therapy (CBT) and Exercise and get back to work. This has cost the tax payer BILLIONS in currency and the disease remains incurable. Research funding ...

Tags: ME, Myalgic, Encephalomyelitis, CFS, Chronic, Fatigue, Syndrome, XMRV, XAND, Retrovirus, HGRV, HGRAD, HMRV, Research, neuro, immune, disease, cytokine, MIP-1, chemokine, MCP, macrophage, CD3+, Cell, CD57+

Tuesday, November 22, 2011

An Interview with Pennies for Patients Hero Madeline

An Interview with Pennies for Patients Hero Madeline Tube. Duration : 3.20 Mins.


Ms. Monica, of The Leukemia & Lymphoma Society, interviews Madeline - one of Georgia's state-wide high school honored heroes for Pennies for Patients! Madeline shares about her diagnosis, what treatment has been like, why research is so important... AND her love of Justin Bieber!

Keywords: blood, blood cancer, leukemia, penies for patients, leukemia & lymphoma society

Saturday, September 17, 2011

Drug Shortages Force Tough Choices for Patients, Doctors

Drug Shortages Force Tough Choices for Patients, Doctors Tube. Duration : 8.65 Mins.


Read the Transcript: to.pbs.org More than 180 critical generic drugs are in short supply across the United States. Betty Ann Bowser reports on how shortfalls of key medications are creating problems for doctors and patients alike.

Tags: PBS newshour, Betty Ann Bowser, drugs, prescriptions, medical, hospitals, doctors, patients, health care, medication, united states

Friday, September 2, 2011

XMRV found in European ME/CFS patients

XMRV found in European ME/CFS patients Video Clips. Duration : 2.30 Mins.


September 2010. After the bombshell findings of Murine Leukemia Virus Related Virus (XMRV) being discovered in American CFS patients and this finding being published in the highly coveted SCIENCE journal (Lomardi et al, 2009 - Detection of an infectious retrovirus XMRV in the blood cells of patients with CFS) by the Whittemore Peterson Institute (WPI) and this finding confirmed as real by the American government FDA and published in PNAS journal (Alter et al, 2010 - Detection of MLV-related virus gene sequences in blood of patients with chronic fatigue syndrome and healthy blood donors) who discovered polytrophic MULV's in CFS patients - things in Europe aren't so rosy. Or so people are lead to believe..... due to the silence in the media and endless 'failed' studies using outspoken denialists of ME/CFS, methods that cannot detect XMRV and a cohort of psychiatrically ill people who do not meet the Criteria for neuro immune CFS or ME. The British and Dutch say they can't find XMRV, and it's probably contamination, and thus won't fund any more studies because they cannot find anything. Now, by total coincidence, both these countries have spent decades blaming their own citizens with ME/CFS and telling them their viral symptoms are a 'belief' in between the ears, and they need to manage their illness with Cognitive Behavioural Therapy (CBT) and Exercise and get back to work. This has cost the tax payer BILLIONS in currency and the disease remains incurable. Research funding ...

Keywords: ME, Myalgic, Encephalomyelitis, CFS, Chronic, Fatigue, Syndrome, XMRV, XAND, Retrovirus, HGRV, HGRAD, HMRV, Research, neuro, immune, disease, cytokine, MIP-1, chemokine, MCP, macrophage, CD3+, Cell, CD57+